Lambda Legal is
appealing a decision by Arizona's Medicaid program
denying a woman a liver transplant because she has HIV,
saying the refusal may cost the woman her life.
"Essentially [the Medicaid provider] has a list
of conditions that disqualify people for transplants,
and HIV is on that list as a blanket rejection. There is no
valid scientific evidence that indicates that people who
have HIV fare any worse than anyone else who needs an
organ transplant," said Jen Sinton, HIV project
staff attorney at Lambda.
In their appeal,
filed Thursday in preparation for Friday's hearing,
Lambda specifically cites a 2002 New England
Journal of Medicine article on the subject
finding "no evidence of poorer survival among
otherwise healthy HIV-positive patients who are
receiving antiretroviral therapy," which Sinton said is this
patient's case. "We firmly believe the policy is unlawful,
and we ask the Arizona Medicaid program to grant an
exception," Sinton said. "We would also like to change
the Arizona Medicaid policy and take HIV off the
blanket list."
The patient,
49-year-old Phoenix resident Brenda Gwin, was diagnosed with
end-stage liver disease in November 2004, and her condition
deteriorated soon after. In June 2005 her doctors said
she qualified for a liver transplant, but the Arizona
Health Care Cost Containment System--the state's
Medicaid program--denied the request for coverage.
"Without the transplant her treating physician has
estimated that her life expectancy would be no more
than five years and very possibly less than one year,"
Sinton said.
According to
Lambda, HIV-positive patients being singled out for denied
coverage is not new. "I think some of these policies
originated in the very early years of AIDS in the U.S.
when there were not viable treatment options," said
Sinton. "There shouldn't be any blanket rule for
HIV; you really need to look at individual cases." On
Thursday, California governor Arnold Schwarzenegger signed a
bill saying medical providers can't deny organ
transplantation based on HIV status alone. (Neal
Broverman/Advocate.com)