A death in An American Family
BY Advocate.com Editors
January 22 2002 1:00 AM ET
Part I: Winter ’01 Is There a Michelin Man in My Family Tree, or What?
Last winter, ’01, was typical of any year in recent times for me. Six years earlier, my gig writing a regular column for The Advocate had to, regretfully, be put out to pasture thanks to a full-time career as a crystal addict. I’d finally rehabbed from the drugs and drink, and I was a lonely hermit, presiding over my nine stray cats in a small one-room kingdom on a hillside in Los Angeles’s Echo Park, where I took many naps and read English rock magazines. I was not in great health — big shock. But I was feeling well enough to still say yes when a girlfriend asked me to accompany her to the University of California, Santa Cruz, in the spring to move her 18-year-old son for summer break.
Shortly after the three of us set upon his dorm room to dismantle it, a small but sharp twinge of pain registered just under my left kneecap. And it would not stop. In fact, it got worse. For the duration of the weekend and through the trip home, it got worse and worse. Damn my friend, I said to myself as it throbbed away. How could she have forced me into so much work? But on returning to L.A. and going to the doctor that following Monday, I found out it had little to do with a twisted knee. It was a septic infection that had settled under my left knee. But I still believed I was invincible and continued my old lifestyle.
However, it was only a couple of days later that I awoke one afternoon in Cedars-Sinai hospital. I don’t know how the day started out, but I had been found in a mud puddle near Echo Park Lake at 4:30 in the morning. At the hospital, I had accosted the nurses and doctors. I ripped out the I.V. needles leading into both my arms. Blood. More blood. Then there was my left leg. Sometime during the previous 48 hours, it had swollen to at least four sizes larger than the right one. The skin was shiny and tight. God was partway through inventing a new Pokémon — me. Though doctors told me I should stay in the hospital, I was having none of it. I returned home; me, the cats, and my little wooden house in the wilds of Echo Park. Ready to stick it out to the bitter end, little did I know, in terms of my domestic setup, that finality was about as close as the nearest Starbucks.
Part II: The Summer of My Incontinence.
Actually, bona fide incontinence waited until fall to make itself known. Still, as we passed the halfway mark of the year, I was not without plenty of disillusion. But as we crawled toward that final quarter of the year, waves of human degradation began breaking over my body. Daily bouts of catastrophic diarrhea suggested my intestinal tract was undergoing some sort of Chernobylish meltdown. My belly — for that is the only word with which to adequately describe my stomach — had grown taut as a kettle drum. My leg was now not only swollen and unusable but had developed a needles-and-pins sensitivity that completely obscured any other feeling. While my leg still tingled constantly in a most uncomfortable manner, I could be standing on a tack and not notice it. All this plus the fact that it seemed I was now racing to the hospital every couple of weeks for a six-hour transfusion session to replace the blood my body was not replenishing. This was leaving large gaps in my energy and hollows where my cheeks had once been. I was, in short, beginning to look a little like a WeHo version of the Crypt Keeper. After a few haunted weeks spent lurking between the sheets in my mother’s bedroom, it was decided to get me back into the hospital.
Part III: Waiting, waiting, waiting…
I thus spent August and part of September in hospital rooms about town. Perhaps there is no agony worse than the tedium I then experienced waiting for Something to Happen. I should say that when you’ve grown sick of reading and bug-eyed from watching TV, when your friends are all visited out and there’s nothing else to do, no words can adequately praise the link to the outside world provided by your parents and family. I was going insane. There was no exact diagnosis. The unspoken one, everyone knew.
Suddenly…news. Word came along the hospital jungle that they were booting me out. With the newfound gusto that a minimum-wage earner gets shortly before his work day ends and his allotted amount of work still remains to be finished, I was packed up and told I had to find myself a rest home to stay in. They did not tell me what was wrong or what could be done about it. Suffice it to say that this did not give me much hope.
Part IV: Revelations, Anyone?
You know those people who tell you they’ve forgotten how to cry and that they can’t anymore? I was one of them — until I crash-landed at the Carl Bean hospice facility on the northern tip of south-central L.A. It’s not because the facility is bad — on the contrary. The food is the best I’ve had in an institution — and believe me, by the end of the summer I had become quite the hospital food gourmand. The nursing and doctoring staff? No words can do justice to their efficiency, thoroughness, and all-around human compassion above and beyond the call of duty.
But what I learned in this situation is how easy it is for me to cry. Having been one of those who didn’t cry at anything, I am now faced with mortality, finding myself on a deserted beach on the brink of a saline washout. And forget about my family; just a sidelong look at my mom while visiting her home and watching her prepare dinner struck a gusher. Or my giving a toast at a dinner for my brother and sister: Halfway through, yours truly simply kidnapped the situation by bursting into a massive crying jag that left my sisters frozen, silent, and with two long tearstained trails on their cheeks. Definitely not the most generous move to inaugurate a “happy occasion.”
Epilogue: This is the end, my friend
I recently read that “a sentence of death concentrates the mind wonderfully.” True, but you’ve got to be able to excuse yourself from what you can and can’t concentrate on. Beware flights of fancy. Surely it sounds great to finally envision the perfect rock band, the script that is right in front of your nose, the inevitable volume of memories that the world must see.
And you must be prepared to handle those “What to do?” moments. My doctor told my already-hysterical mother, “Pat, you’ve got to face it. You’re going to outlive Lance, so you may as well get prepared!” Neither of us felt good about that moment. Or the fight between friends when a dear pal blurted out to me that he’d speak well of me at my wake.
When will it happen? That’s certainly got to be number 1 on the most-often-asked-questions-of-myself list that I usually break out at 4:12 a.m., when no one’s around to answer. All I can hear is my own breath pulling like cotton through my nostrils. Now that I’ve gotten up enough nerve to ask the kindly doctors and nursing staff for some illumination, most likely they’ll turn such queries back on me, asking how long I think I’m going to live or telling me it’s all relative.
Still, I got the truth, though it came in a variety of vague replies. And the truth was not pleasant. After the question “Am I dying?” was met with responses that ranged from “What do you think?” to “Lance, everybody dies sooner or later,” salty tears were running down my cheeks.
Such attempts on my part to sleuth out a departure date are suddenly replaced by one of the staff breezily telling me that my liver has completely stopped operating. The ammonia now racing around in my body (which must be urine, though I haven’t got the nerve to clarify that salient point) is causing me to have memory lapses, and by that time I’m about ready to get back to discussing the food, the weather, anything, as long as it is superficial.
Oh, yes, it has been a year full of dark revelations, but without the fame or glory they might help offer someone else some little shred of solace if they are on the same road.